Infobox Dotcom company company name PatientsLikeMe company type Private company Private foundation 2004 ... PatientsLikeMe is a data driven social networking health site that enables its members to share ... support, and learn first hand about ways to cope and manage. PatientsLikeMe aims to help patients answer ... there? History Founder s story PatientsLikeMe was co founded in 2004 by three Massachusetts Institute ... PatientsLikeMe launched its first online community for ALS patients in 2006. From there, the company ... , ref http www.marketwire.com press release Patientslikeme 1003655.html Marketwire, UCB and PatientsLikeMe .... ref http blog.patientslikeme.com 2011 04 11 patientslikeme calls all patients with any condition to join PatientsLikeMe Calls All Patients With Any Condition to Join ref By June 2011, PatientsLikeMe ... than 4,500 ALS members, who have helped make PatientsLikeMe s flagship community the largest ... PatientsLikeMe allows members to input real world data on their conditions, treatment history, side ... 9th, 2011, PatientsLikeMe announced ref http www.patientslikeme.com press 20110609 28 patientslikeme ... trial awareness PatientsLikeMe Information for industry partners page on clinical trial awareness ref Scientific work PatientsLikeMe has an in house team of research scientists led by Research & Development Director Paul Wicks, PhD. Since 2006, the PatientsLikeMe research team has authored more than a dozen peer reviewed published scientific articles. In addition, PatientsLikeMe has been cited ...?q patientslikeme Google Scholar search for PatientsLikeMe ref In 2008, a small Italian study was published ... data of 348 ALS patients and taking just nine months to complete, PatientsLikeMe conducted a study ... with the company s Openness Philosophy, PatientsLikeMe has several collaboration partnerships ... describes four core values ref http www.patientslikeme.com help faq Corporate PatientsLikeMe ... for no surprises. In an effort to ensure transparency, PatientsLikeMe discloses its business partnerships ... more details
his youngest brother Ben and longtime friend Jeff Cole to found PatientsLikeMe . PatientsLikeMe ... all of their disease related medical information. PatientsLikeMe operates disease specific communities and allows for dialogue between patients about how to improve care and accelerate research. PatientsLikeMe ... and medical device industry. PatientsLikeMe was named one of 15 companies that will change ... of PatientsLikeMe and is focused on developing a broad patient centered platform that improves ... PatientsLikeMe http www.ted.com talks jamie heywood the big idea my brother inspired.html The big ... and development program and research center. http www.patientslikeme.com PatientsLikeMe is an online ... more details
Image StephenProfile2011.jpg thumb Stephen s profile on the website PatientsLikeMe set up by his brothers and friend Jeff Cole to help people with ALS Stephen Heywood April 13, 1969 &ndash November 26, 2006 was an United States American general contractor builder and self taught architect , specializing in the renovation of old houses. http www.boston.com partners worldnow necn.html?catID 83459&clipid 1961887&autoStart true&mute false&continuous true He was diagnosed with amyotrophic lateral sclerosis ALS in 1998, at the age of 29. He was the subject of His Brother s Keeper A Story from the Edge of Medicine , written by the Pulitzer Prize winning author Jonathan Weiner , and the documentary film, So Much So Fast , which premiered at the 2006 Sundance Film Festival . Stephen Heywood was a catalyst in the ALS research field, driving scientists and leaders to find effective treatments for ALS patients. He is survived by his wife, Wendy Stacy Heywood and son, Alexander Stephen Heywood two brothers, James Heywood chief executive James Heywood , and Benjamin Heywood, co founder of a website for patients with ALS and other life changing illnesses, PatientsLikeMe . http www.pbs.org wgbh pages frontline somuchsofast heywoods ben.htm and his parents, John Heywood , Sun Jae Professor of Mechanical Engineering, and Peggy Gilkerson Heywood. Stephen lived in Newton, Massachusetts with his wife and son until his death at age 37. He died from a detached respirator in November 2006. External links http www.pbs.org wgbh pages frontline somuchsofast So Much So Fast Frontline US TV series Frontline http www.patientslikeme.com PatientsLikeMe.com , a website for patients with ALS and other life altering conditions, set up by Stephen s brothers Jamie and Ben Heywood Persondata Metadata see Wikipedia Persondata . NAME Heywood, Steven ALTERNATIVE NAMES SHORT DESCRIPTION DATE OF BIRTH April 13, 1969 PLACE OF BIRTH DATE OF DEATH November 26, 2006 PLACE OF DEATH DEFAULTSORT Heywood, Steven Category ... more details
unreferenced date July 2011 Speakers at various TEDMED conferences Dr. Peter Agre , Nobel Prize Laureate and director of Johns Hopkins Malaria Research Institute. Bloomberg School of Public Health Dr. David Agus , Professor of Medicine, University of Southern California Lance Armstrong , chairman of the Lance Armstrong Foundation Mike Barber, Vice President of GE s Healthymagination. Dr. Ann Barker, deputy director, National Cancer Institute Dr. Regina Benjamin , the 18th Surgeon General of the United States David Blaine , magician Dr. Ger Brophy, Ger Brophy, Head of New Product Development, Medical Diagnostics, GE Healthcare Dr. Atul Butte , Stanford University School of Medicine Steve Case , founder of America Online Aneesh Chopra , the first Federal Chief Technology Officer of the United States Deepak Chopra Dr. Deepak Chopra , founder of the Chopra Center for Wellbeing and former chief of staff, Boston Medical Regional Center Peter Daszak, president of EcoHealth Alliance formerly Wildlife Trust Peter Diamandis , president of the X Prize Foundation Eric Dishman, director of Health Innovation at Intel s Digital Health Group Helena Foulkes, executive vice president of CVS Caremark Craig Fugate , director of the Federal Emergency Management Agency FEMA Anita Goel Dr. Anita Goel , chairman & scientific director, Nanobiosym Diagnostics Thomas Goetz, executive editor of Wired magazine Stephen Jay Gould , Harvard University evolutionary biologist Michael Graves , architect Dr. Sanjay Gupta , CNN chief medical correspondent, assistant professor of neurosurgery at Emory University School of Medicine and associate chief of the neurosurgery service at Grady Memorial Hospital in Atlanta. Jamie Heywood , co founder of PatientsLikeMe Danny Hillis , chairman and co founder, Applied Minds, Inc. Dr. Frances Jensen of Harvard University and Children s Hospital Boston Naomi Judd , singer & actress Mehmood Kahn, CEO, Global Nutrition Group and CSO, Pepsico Dean Kamen , president of ... more details
The Blue Button enables users of personal health record s to download their personal health information as an ASCII text file. ref name Departmentof Department of Veterans Affairs Blue Button Website ref Several Federal agencies, including the United States Department of Defense Departments of Defense , United States Department of Health and Human Services Health and Human Services , and United States Department of Veterans Affairs Veterans Affairs , implemented this capability for their beneficiaries. ref cite web url http www.whitehouse.gov open innovations BlueButton title Blue Button & 124 The White House publisher Whitehouse.gov date accessdate 2012 04 19 ref The Blue Button ASCII file is machine readable, meaning it can be parsed with a simple program by a computer. ref cite web author CTO url http www.va.gov BlueButton Getting Started for Developers.asp title Getting Started for Developers Blue Button publisher Va.gov date accessdate 2012 04 19 ref ref cite web url http blog.patientslikeme.com 2012 01 23 a new way to import E2 80 9Cblue button E2 80 9D patient data from the va title The Value of Openness The PatientsLikeMe Blog A New Way to Import Blue Button Patient Data from the VA publisher Blog.patientslikeme.com date 2012 01 23 accessdate 2012 04 19 ref As a text file, it can be read and printed easily by users. File The Blue Button Logo, April2012.png thumb The Blue Button Logo, April2012 History Origins The Blue Button initiative began during the Markle Foundation Work Group on Consumer Engagement meeting in New York City on January 27, 2010. ref name Nazi2 cite web last Nazi first Kim M. title VA s Blue Button Empowering People With Their Data url http www.blogs.va.gov VAntage 866 vas blue button empowering people with their data publisher Vantage Point accessdate February 22, 2012 ref At the time, Meaningful Use was newly authorized and dominated health care IT dialogue in the United States. ref Modern Healthcare Modern Physician 20th annual Survey o ... more details
two other uses the type of service the concept of relationships between people Social network a list of services List of social networking websites Please do not insert external links into the body of this article they will be removed as link spam. Please do not place references to specific social networking services in the following article lead in, as consensus of 19 April 2007 agrees that this is not appropriate in establishing the meaning of the article title. They will be removed. A social networking service is an online service , platform, or site that focuses on facilitating the building of social network s or social relation s among people who, for example, share interests, activities, backgrounds, or real life connections. A social network service consists of a representation of each user often a profile , his her social links, and a variety of additional services. Most social network services are web based and provide means for users to interact over the Internet , such as e mail and instant messaging . Online community services are sometimes considered as a social network service, though in a broader sense, social network service usually means an individual centered service whereas online community services are group centered. Social networking sites allow users to share ideas, activities, events, and interests within their individual networks. The main types of social networking services are those that contain category places such as former school year or classmates , means to connect with friends usually with self description pages , and a recommendation system linked to trust. Popular methods now combine many of these, with Facebook , Google and Twitter widely used worldwide, The Sphere social network The Sphere luxury network , Nexopia mostly in Canada ref cite web url http www.alexa.com data details traffic details nexopia.com title Nexopia stats on publisher Alexa.com date accessdate 2011 03 13 ref Bebo , ref http www.techcrunch.com 2007 08 20 windo ... more details
13 December 2009 ref PatientsLikeMe Online community for patients with life changing illnesses to find ... their outcome. dts 2006 nts 109587 ref http www.patientslikeme.com PatientsLikeMe user stats ... more details
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